Вопрос: Как диагностировать липедему?

Thank you for the video. I’m from the Czech Republic, suffering from lipo-lymphedema and there is very little treatment over here too. Mainly just the conservative one, although you can get skin tightening, abdominal plastic etc., but only for lymphedema. Lipedema is still not classed as a disease. Keep up the excellent work. Well done and thank you again.

ın turkey, many people do not know about it. I have had a lıposuctıon 2 years ago. But now I am 70 kgs and ı am 1.55 height. I have sometimes pain in my legs, sometimes ı do not have any pain. I do not know how to not to have any paın.

im only 6 years old when i noticed unextraordinary fat? in my thighs im now 12 years old and my thighs just kept getting bigger and bigger everyday, im not sure if i have lipedema because i only have fat thighs but i dont experience any kind of pain in my legs, im gonna turn 13 soon so that means im gonna be a teenager in a few months, i cannot do anything with my thighs anymore, i would lock myself always in my room and cry or search on youtube or google about «fat thighs» because im clearly skinny from my upper body but in my thighs its just like completely from another person, im getting so insecure about my legs, im gonna turn teenager in a few months and i cant even shorts or mini dresses, im scared if i will have this lipedema because im only 12 and my thighs looks exactly like yours in the picture you showed in the vid pls help!!����

edit (after 1 month): i started to do more exersise than before, and i slowly understood why i have this huge thighs, its because eversince corona came, im always sittng in my room whole day WITHOUT anykind of exersise for 6 months! but now im slowly losing the fat in my legs ����

Thank you for posting this. I definitely have had suspicions that I have this disorder, because my lower half is proportionately apt bigger than my upper half. I’ve always had really big legs and calves. I’m definitely going to have to talk to a doctor.

Myra! Love it, love it, love it! Thank you so much for making this video. German healthcare is way better than the UK for lipoedema. In the UK some ladies get no conservative treatments whatsoever! Others get one pair of compression every 6 months! We get no MLD therapy and privately it costs £75 an hour! We do not have healthcare insurance unless we buy seperately, again big £££££, our NHS is supposed to be there for us when we need it and we ALL pay into it though our taxes, but no lipoedema ladies can get surgery. I started a petition to change this and we need UK adult citizens to sign it to make the government tell us why we must wait to have our knees fail and use a wheelchair and they STILL wont help us. Please UK adults seeing this wonderful video and wanting to help sign and share, share, share this video and the petition https://petition.parliament.uk/petitions/118076 and help 3.5 women in the UK have a pain-free future x

I have nodules in almost all of those locations, and have always struggled to lose weight, even when extremely active and eating very healthy. I also have scars from multiple abdominal surgeries that ruined the muscles in my abdomen, and fibromyalgia. Fighting for disability for damage to my body and joints from things I’ve been through.

thank you for sharing!! i literally have been looking at this disease for so long and i havent found someone who has legs that arent gigantic but still have the characteristics of the disease. this confirms all my problems down to even the same awkward stance. ive been killing myself to eat healthy and exercise more than i ever did (i play soccer and hockey) and ive lost weight but my legs are still the same. its so frustrating knowing something out of my control is stopping me from being prettty and no matter how much work i put into it i’ll never look like how i picture myself

This video really resonated with me. I just learnt what Lipoedema is through constant googling to try to figure out my ‘abnormal’ thigh fat, even when I was very skinny elsewhere. I’m in the process of getting properly disgnosed (Doctor is ruling out thyroid and hormonal issues like yours did). I want to get liposuction too but my doctor doesn’t think it’s a great idea because it’s so invasive. Do you happen to know if liposuction can prevent it from advancing to future stages? By getting rid of the excess fat early? Will it always progress further over time or can it be ‘mild’ and stay at stage 1? Honestly now that I know I can live with it cosmetically but the huge fear is it advancing to the later stages:’( it was a relief to know there is something medically wrong when I, like you, was so confused and tormented. But the fear of it advancing scares me so much.

Thank you so much for sharing I was just diagnosed today. I wasnt expecting it. I am feeling really down about the whole thing since I have been dieting for a year and not seeing any changes. Hopefully now I can figure this out and work on my legs. Thank you again!

Well put together and very informative. You are an ambassador of knowledge! I love you! I have suffered for 30 years from this disease. There is no hope with out education and activism. Great video! Tell us more!

Liebe Steffie!(Ich hoffe man schreibt es so ;))

Ich finde deine Videos sehr gut und aufklärend! Ich hoffe,dass es dir und deiner Mutter gut geht! Viel Glück in deinem restlichen Leben und bleib gesund! LG Nici

I’m learned about this yesterday and it makes me so sad. I’ve always been skinny but with really fat legs. It makes me so insecure and someone pointed to out last night which causes me to do research. I wish there was more you can do besides liposuction ����

Thank you for this video. I am from South Africa and I am stage 4. I wish I could have liposuction. Our medical insurance sees it as an asthetic procedure too, and must be at our own cost. Many people are uneducated on this subject. I have been made to feel that I am fat because I don’t have self control and my husband’s family, who are into their health and fitness, have mocked me, taken pics of me without knowing and laughed at it. It is so difficult emotionally to deal with this disease alone.

wurde noch nicht diagnostiziert aber bin mir sicher dass ich das auch habe. bin auch türkin, btw. hab diät versucht, sport, und ja sogar gehungert (hatte bulimia). und erst als mein gewicht extrem niedrig wurde (genau an der grenze von untergewichtig) sah ich ein klein bisschen unterschied in meinen beinen und hüften. hab auch diese ekligen reiterhosen und hasse sie am meisten (auf englisch heißen die dinger «saddlebags»). und zu der zeit hab ich am tag nur vier eier und zwei äpfel gegessen…
body dymsorphia hab ich auch krass wegen den beinen und hüften weils einfach fett aussieht, obwohl ich oben rum einfach super dünn bin. hab sehr kleine brüste und einen relativ flachen bauch und sonst auch obenrum fast garkein krass sichtbaren fettüberschuss. aber meine beine sehen halt immer so aus als ob sie zu dick für meine starur sind und iwie gleich platzen.. hatte beinübungung über drei monate gemacht, vorallem für die reiterhosen, und muskelaufbau nur an der vorderseit meiner oberschenkel, die seiten und hinten waren immernoch krass schwabbelig..
ja dein video hat mich auf jeden fall mehr überzeugt, dass ich das auch haben könnte. habe zwischendurch schmerzen an meinen beinen oder ein brennendes gefühl, dass meine beine sich sehr heiß anfühlen. hab auch diesen drucktest gemacht um zu sehen wie das fett unter meiner haut aussieht und es sieht auf jeden fall so aus, wie es bei lipodämen sein soll.
ich denke ich gehe zum arzt damit jetzt:/
ist so doof dass die krankenkasse die liposuction aber nicht bezahlt. bin auf jeden fall, wenn ich das habe, erst im anfangsstadium.
und noch was: habe das denk ich von meiner oma geerbt, weil sie auch diese extrem dicken beine hat. so elefantenbeine. und jz wo sie älter ist sieht es richtig richtig schlimm aus

Lipedema is called painful fat syndrome. I have it too. When I learnt it I was depressed for whole week. During overseas holiday / hot summer/ I had horrible pain in my ankles. I could not walk. My legs were swollen all the time.I did not know what is wrong with me. Now I stay at KETO diet and drink water when hot. Avoid flower and sugar in diet. Try fast during the day 5-6 hours. Bad news is that my mum had it too.
She stopped walk at 83.NOBODY diagnose her properly /she complain about leg pain/ and I did not had idea of lipedema existens.

Very informative. I’m 67 and heavy my entire life. Never knew about this. Had one side mastectomy 4 yrs ago. Arm becoming tender from pit too elbow. Have appointment this week back at Cancer Dr about this.

Thank you thank you for this video! My legs are exactly the same along with all the women in my family. My family thought I was crazy to complain about them because thick legs and big butts are what make us so desirable. I on the otherhand tried desperately to lose weight from age 11 to now. I dieted, exercised and nothing could get rid of these thighs. After my first baby I basically starved off my baby weight. I just stopped eating and didn’t really exercise because exercise made me bigger. Now during and after my second pregnancy my legs are the worst they’ve ever been and the pain at night has been awful. I had no clue anyone else had this problem. I thought I was imagining it.

Ich mach mir mal einen Arzttermin:D Vielen Dank für’s teilen! Als ich das Foto von dir aus Izmir in Shorts gesehen hab dachte ich mir so: Ey, das sind doch meine Beine!
Ich hab jetzt nur irgendwie die Befürchtung, dass mein popeliger Hausarzt mir da nicht weiterhelfen kann. Bei welchen Ärzten warst du?

Your gynecologist was ABSOLUTELY WRONG about the pill not affecting your legs. Lipedema is hormonally induced. Researchers know that lipedema often presents at puberty, with pregnancy and/or menopause. Also, stress may play a role as well. The fact that you have been unable to lose weight in your legs may have been prompted by birth control, but it is most likely something that would have progressed anyway. This condition needs more awareness in the medical community. I have stage one and my mom and sister have stage 2. I am hoping for better treatments and eventually a cure for this. Thank you for making this very honest video about your struggles. Body image can be challenging for everyone, but there is an additional psychological impact on women with lipedema because we are not in control of this. We have been told diet and exercise is the solution for our large legs, but despite heroic attempts (and often starvation diets), the legs remain the same size or actually increase in size! Not being able to control this is almost like being held for ransom in our own bodies.
You are very brave to share your story in such a public way. It will certainly help others.

im trying to find a doctor in Decatur are Atlanta area or anywhere in the area that can be able to do the surgery for me I was in an automobile accident and I developed trauma and 3 years later I was diagnosed what lymphedema in my left leg its hard for me to stand and walk

In the beginning when I first found regarding this cellυlite trick I was truly confused. At that time I desperately required therapy for this cellυlite condition, and so I tried it. Right this moment, it has significantly smoothed away all the unmistakable appearance of that unattractive cellυlite from my new, soft skin. The smoothness and gentleness of my skin have enhanced. You gotta appreciate it as I love it also. I hope you will get it also, research on Google. Tip name is Thomas Kane†ozo
Good luck

I got big legs when I was around 12 but I thought it was just me getting fat and since then no matter how much I exercised or ate healthy I never got thinner on my legs after 8 years full of self-hate and no confidence I discovered that I had lipedema and the first thing I felt was relief because it wasn’t my fault I was always blaming myself but it wasn’t my fault! Then I got frustrated because unfortunately there are not many treatments for it other then liposuction which is expensive and still risky:( But I was kind of lucky because I live in Turkey and in Istanbul there is a famous Cardiovascular surgeon who has specialized in lipedema and does treatments I got treatment for 1 week and he told me to fast walk everyday for 45 mins and to kind of eat like a vegan except I’m allowed to eat fish

Thank you for making your video and for then translating it in English for us. I am personally very grateful.
I’m 52. My heavy legs were diagnosed as having lipoedema not long after my first son was born, but we are sure that I was first showing signs of it from the age of about 16.
But I now have a much bigger issue to deal with and I need as much help as I can get.
I have another chronic condition called Enteric Neuropathy basically my digestive system doesn’t work properly. I have a stoma bag and a catheter bag to disguise/ conceal.
Please can someone tell me where to go to find clothes that will accommodate my oversized arms, legs and rear-end as well as taking into account a stoma bag that’s sited on my stomach and a catheter bag that’s strapped onto the lower end of my thigh.
I know that in the grand scheme of life as a whole it’s not a major problem to have to deal with, but I am desperate. I just want to look feminine. Does ANYONE have a suggestion as to where to look?
Thank you
Sarah
PS: I live in the UK

Du hast schon fast 6.000.000 Abonnenten.
Ich sage nur du hast es erreicht das dir so viele Menschen zuhören und dich unterstützen und,und,und…
Du gibst dir soooo viel Mühe ♡
Du hast sooo stark gekämpft!

Ich hätte dich wahrscheinlich nieeee selber entdeckt♡
Ich habe es dir schonmal gesagt wen du dich erinnerst:)
Das du mir auf Insta gefolgt bist und so…

Ich habe mich immer mehr für deine Videos, deiner Krankheit…interessiert:)

Ich hoffe wir dürfen dich weiterhin begleiten:)

Das Ende war Außerdem sehr witzig:D

lipedema in the groin and lower abdomen for men, who can help with this? where to turn as my general doctor does not even know what this is to begin with. no one take men seriously in the health care today! I have so much pain I cannot sleep

Watched this video and just like the comments here i do feel pain on my legs. Eventhough im only 8 pounds overweight, i can see the upper parts of my legs getting bigger. I do walking and jogging but i kept on complaining because of the pain.

This is me �� I work out 6 times a week, 3 of the days i am a black belt in taekwon-do martial arts which if you don’t know it is mostly kicking and jumping leg work and still my legs are SHOCKING and pain �� omg I bruise so easy in my legs I also have this in the tops of my arms, only the tops tho which they look bigger then the lower half of my arms. I saw my doctor and bawled my eyes out I feel like I’m going crazy and she told me basically it is in my head and gave me the «you don’t get to choose where fat comes off your body when you lose weight» �� I have lumps under my skin which are incredibly painful to apply pressure to, anywhere from my waist down including my lower back, tops of my arms my thighs, calf’s all of it. ��
Do you have flat feet? Mine are incredibly flat and I hear it can be a symptom also

You are stunning

I am 65 years old and was just diagnosed by a Physical Therapist. I went to her for lymphedema and she told me my more important condition was Lipedema. So much makes sense now. And like you, I shamed myself and didn’t listen to my body. Thank you so much for this video!

So I am not 100% sure if I have lipedema. But the symptoms are all similar with me. But recently massages help me a lot Idk. I started doing a lymphatic massage routine on my legs as a night ritual with some baby oil and they look so so much better. I have the same body type and same issue when it comes to losing weight. But massaging, having vegetable soups for dinner and drinking lemon water seems to work for me when it comes to slimming down my legs:) hope that helps.

I have only recently realized that have had lipedema since puberty. None of the Dr.’s ever addressed it even when all the signs were in plain view, and complaints were voiced. I have never been obese, and always reasonably fit. Yet, when I repeatedly complained about, and even showed photographs of my incredibly swollen ankles and feet, along with the fat folds in my knees that never went away even when I was emaciated (weighing 94 lbs), I was dismissed by my PCP as being «dramatic.» Recently, I was diagnosed with lipedematous alopecia. Even with this diagnosis, nobody connected the dots. I am 66 years old, and thanks to this information, I finally put the diagnostic puzzle together.

What kind of doctor do you go to to get diagnosed with this,I think I might have this but it’s a problem here in the states too….it’s not common and so there for it gets brushed aside.Not many people know about it…��

Thank you for calling attention to this sad and little-known disease. I have a question. The articles I have read say that standard liposuction can be dangerous to the lymph system, so they need to use special liposuction techniques, as outlined in the wikipedia article. Can you say more about this? https://en.wikipedia.org/wiki/Lipedema#Treatment

Danke dir, dass du so ein Video machst! Es ist so ein Dreck diese Krankheit. Man hungert, man macht jede Diät, dann wundert man sich warum nichts passiert. BEI EGAL WAS DU MACHST.
Hab im Fernsehn nachts um 1 Uhr eine Reportage gesehen und dachte eigentlich immer, dass wenn man zu dick ist die Beine einfach so aussehen, mit den ganzen Dellen die bei mir sogar bis zu den Kniekehlen gehen… Auf jeden fall haben die dann über die Krankheit geredet und ich saß da so wait what dicke Leute sehen so unter Hosen nicht alle immer aus? Oh shit
Mache jetzt seit letztem Sommer Workouts und es tut sich ein bisschen was also dachte ich heute Nacht ich guck mal auf YouTube �� Aber leider kommt man irgendwann an einem Punkt an, da ist das kranke Fett und das wird halt wie du sagst nur durch eine OP weggehen. Allerdings wird Stadion 3+4 ja bereits bezahlt und man arbeitet daran, dass 1+2 auch bezahlt wird!
Das mit den Beinschmerzen kann ich sooo verstehen. Man läuft mit den Freunden ein bisschen und es tun einem sooo früh die Beine weh! Ich hab mich nie getraut was zu sagen und wie du sagst, bin mit Schmerzen rumgelaufen wo es sich anfühlt als wenn man Messerstiche im Bein hat
Ich find es so verdammt mutig, dass du deine Beine auch zeigst! Ich war oft am überlegen ein Video darüber zu machen und dachte mir so «Oh gott…die sind so voller Dellen und ich hab so hässliche Beine das darf niemand sehen» aber DU MACHST ES EINFACH ����

Hi! Thank you for sharing your story, I have a similar story to you, although Iv been overweight since I was a child. But I spent my entire 20s starving myself and nothing! You get jokers who cut out junk food and they lose weight and for me…. nothing! I often thought I was going crazy so when I was finally diagnosed with lipoedema it all made sense! But it really does suck! Thank you for giving such a detailed and honest story! I was watching thinking, oh my god yes! I hope you get it all sorted soon! X

I have it also… Stay away from HIGH FAT foods. No red meat. Only lean meats with low fat. No dairy and no sugar. Intermittent fasting is also extremely helpful. It’s all in what you eat… Cut high fat meats, cut dairy (no cheese) & cut sugar… Fasting helps

What is the difference between lipedema and being fat? I have a very big booty and thigh, but my upper body are not that big. My shirts are in L size, but my pants are LLLLL. Is that lipedema too? I thought i just fat

What about those with Lipoedema in the arms, thighs and lower legs? Especially my lower legs that have the typical cuff at the ankles (cankles) nobody seems to count those who suffer both arms and legs. I also have cuffs at the wrist.